Use of a Nationwide Personally Controlled Electronic Health Record by Healthcare Professionals and Patients: A Case Study with the French DMP Brigitte SEROUSSI a,b,c,1 and Jacques BOUAUD b,d a Sorbonne Universités, UPMC Univ Paris 06, INSERM, Sorbonne Paris Cité, Université Paris 13, LIMICS, UMR_S 1142, Paris, France b AP-HP, Hôpital Tenon, Département de Santé Publique, Paris, France c APREC, Paris, France d AP-HP, DRCD, Paris, France Abstract. If the wide adoption of electronic health records (EHRs) is necessary to address health information sharing and care coordination issues, it is not sufficient. In order to address health information sharing, some countries, among which, France, have implemented a centralized framework with “new” nationwide care records. The French DMP is a centralized, nationally shared, electronic medical record, created according to the opt-in model. More than five years after the launching of the DMP project, DMPs have been created for 1.5% of the target population, which demonstrates the poor adoption of the tool by healthcare professionals. Among the 583,997 existing DMPs in June 2016, 41% were empty, and 24% of non-empty DMPs were actually accessed. If these “active” DMPs were equally accessed by both healthcare professionals and patients, patients accessed DMP documents four times more than healthcare professionals. Keywords. Personal Health Records, Electronic Health Records/utilization, Attitude of Health Personnel, Patient Access to Records, Patient Participation

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Corresponding author, Département de Santé Publique, Hôpital Tenon, 4 rue de la Chine, 75020 Paris, France; E-mail: [email protected].