Seldom Heard: The Experiences of Clinical Research Participants
ANIMATEURS / FACILITATORS: Linda Furlini, PhD Ethics and Pedagogical Consultant Nick Bogdanos, BSc Ethics and Pedagogical Consultant
SUMMARY
Wherever and whenever clinical research is conducted, research participants inevitably develop certain thoughts and emotions about their experiences. Yet, seldom, if ever, are they asked to share them. Three research participants believe it is important to attune members of the research community to 'hearing' research participants' experiences. They are willing to share their stories and at the same time highlight a spectrum of ethical issues. This session is meant to spur reflections about best ethical practices as well as the value of ‘hearing’ research participants ABOUT THE FACILITATORS / SPEAKERS:
Linda Furlini, PhD, is an ethics and pedagogical consultant. Formerly, she was the administrator of an active research ethics oversight program at the McGill University Health Centre (MUHC). While supervising reviews of Research Ethics Board (REB) approved ongoing studies, she initiated and developed a complementary educational component for the program to meet the diverse educational needs of the MUHC research community in research ethics. Currently, she is a member of the Professional Development Committee for The Canadian Association of Research Ethics Boards (CAREB) and has served on other committees in various capacities and as a member of a research ethics board. Her background includes extensive teaching, research, clinical and administrative experience. Nick Bogdanos, also formerly with the MUHC Research Ethics Office as Quality Assurance and Education Coordinator, has over 20 years work experience in Clinical Research, is also a cancer survivor for over 25 years, which involved a number of recurrences and treatment, and was a participant in a number of research studies. He will be discussing his positive experiences with respect to the recruitment, consent and follow-up processes involved during the studies.
DATE: Le jeudi 22 mai 2014 / Thursday, May 22, 2014 12:00 – 13:00 OÙ / WHERE St. Mary’s Hospital Center 3830 Lacombe Avenue Montreal ( Côte-des-Neiges) Auditorium A (Room B-309) (Sous-sol / Basement) La présentation sera en anglais Un léger goûter sera servi A light lunch will be served
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